Am I as top o’ the morning as this vintage ray of sunshine appears to be? Well, just about!
I still know I have MS, or had MS damaging my nervous system for 12 years, whichever you prefer. One side is still noticeably number than the other, and I have a ringing in my ears that comes and goes, as I have had for years. Fingers on the right hand are a little stiffer than the left hand, though better than before the operation.
But on the plus side:
- Whole days go by now without tripping over my toes
- Feet warm and more flexible
- Energy, energy, energy! I get by with 5 -6 hours of sleep a night, and rarely take naps.
- Cognition – it never hurts to think anymore, and so my writing is not the chore it was becoming in the last half-year before Poland.
Residual sensation of the procedure? Well, for the first month I could usually feel where the stent was in my neck. Not pain, but some discomfort. That’s mostly gone now, just the odd twinge that is not pain, just “presence”. But even that seems to be fading by the week.
I am still on my Plavix blood thinner pills, which I will keep up for a year after the op, and the stomach coating pills that accompany it. I take low-dose buffered aspirin, 1 per day, and will for the rest of my life.
So what to take for my experience? Just this – I personally would do it again. So if you are reading this to try and figure out what to do for yourself or what to recommend to a loved one, please take it as my story — just one story out of hundreds.
To make your mind up you need to click around the internet and do some research. Hit Facebook and search groups with CCSVI in the name; there are dozens now and each seems to have its own group of people returning or about to set off. Click the links on the right side of this blog, and then click the links those links take you to. Read widely, consider your options, and decide for yourself. I believe we will have the Liberation procedure in Canada within 3 years, but meanwhile there is Poland, Bulgaria, India, and who knows what tomorrow, all with different costs and pro/cons. Join the community of interest around CCSVI; you don’t have to be alone as you work out what is best for you.